ºÚÁÏÍø

Sunday 22 December 2024
ºÚÁÏÍø Foundation Trust

FOI_6413

Internal Reference Number: FOI_6413

Date Request Received: 04/01/2022 00:00:00

Date Request Replied To: 04/01/2022 00:00:00

This response was sent via: By Email

Request Summary: Clotting Disorders

Request Category: Researcher

 
Question Number 1:
How many patients has your trust treated (for any medical condition) in the past 3 months with the following drugs:
• Alphanate
• Alprolix
• BeneFIX
• HaemateP
• Idelvion
• Refixia
• Rixubis
• Veyvondi
• Voncento
• Wilate
• Willfact
 
Answer To Question 1:
Section 38 refusal notice applied to all questions
 
Question Number 2:
How many patients have been treated in the past 3 months with:
• Gene therapy for Haemophilia B ONLY
• Desmopressin for Von Willebrand Disease ONLY
• Tranexamic Acid for Von Willebrand Disease ONLY
 
Answer To Question 2:
Section 38 refusal notice applied to al questions
 
Question Number 3:
Of the patients that were treated with Veyvondi in the past 3 months, how many patients received treatment:
• During surgery
• On-demand to treat bleeding episodes
 
Answer To Question 3:
Section 38 refusal notice applied to all questions
 
Question Number 4:
How many patients are registered with your Haemophilia Centre for:
• Von Willebrand Disease – adult patients (age 18 or above)
• Von Willebrand Disease – pediatric patients (age 17 or under)
• Haemophilia B (any age)
 
Answer To Question 4:
Section 38 refusal notice applied to all questions
 
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