Internal Reference Number: FOI_8141
Date Request Received: 06/09/2024 00:00:00
Date Request Replied To: 01/10/2024 00:00:00
This response was sent via: By Email
Request Summary: Treatment and management of patients with Lupus
Request Category: Companies
Question Number 1: Does ºÚÁÏÍø treat patients diagnosed with Lupus (systemic lupus erythematosus including lupus nephritis)? If No, please see question 2 If Yes, please see questions 3 & 4 | |
Answer To Question 1: Yes | |
Question Number 2: If ºÚÁÏÍø does not treat Lupus (systemic lupus erythematosus including lupus nephritis) are patients referred to a tertiary/ specialist treatment centre? If Yes, please state which treatment centre. | |
Answer To Question 2: N/A | |
Question Number 3: Does ºÚÁÏÍø have local guidelines/ clinical pathways/ protocols (including shared care protocols) for the treatment of patients diagnosed with Lupus (systemic lupus erythematosus including lupus nephritis)? If Yes, please can a copy be provided | |
Answer To Question 3: There are no local guidelines, pathways or protocols. However the Trust do follow national and international guidance. Complex patients are discussed at a regional level in the monthly CTD meeting. The Trust submit data on lupus patients on Belimumab to the national registry (BILAG). For lupus nephritis we would share care with the nephrologists, however the Trust also have a SCA (shared care agreement) with primary care to prescribe drugs like mycophenolate mofetil. | |
Question Number 4: How many patients were treated at ºÚÁÏÍø for Lupus using belimumab in 2023? | |
Answer To Question 4: <5 | |
Question Number 5: How many patients were treated at ºÚÁÏÍø for Lupus using rituximab in 2023? | |
Answer To Question 5: 0 | |
Question Number 6: How many patients were treated at ºÚÁÏÍø for Lupus using voclosporin in 2023? | |
Answer To Question 6: We have not used this drug in this Trust. | |
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Our staff at ºÚÁÏÍø District Hospital have long been well regarded for the quality of care and treatment they provide for our patients and for their innovation, commitment and professionalism. This has been recognised in a wide range of achievements and it is reflected in our award of NHS Foundation Trust status. This is afforded to hospitals that provide the highest standards of care.